Our little ROCKSTAR!!!

I have such good news to report today....I simply must begin this post with a prayer:

Father, I thank You for every good and perfect gift that You have given to me in Jesus Christ. Thank You for your grace and the gift of salvation by faith. I thank You that Jesus Christ is in me, the Author and Finisher of faith. I have received the faith of God. I will not shrink back in fear, but I will grow in faith and confidence. I will walk by faith and not by sight. I know that faith pleases You. Nothing is impossible for those who choose to believe in You. I place my trust in You. I know that I will never be disappointed or put to shame for doing so. Thank You for the shield You have provided for my defense. Thank You for Your Word that builds my faith in You. I will walk and live by faith under an open heaven of Your possibilities.

So, Elise had a liver clinic appointment today at Texas Childrens Hospital. As I walked into her appointment this morning, I was nauseated with anxiety related to her weight and lab results. But my baby girl is a fighter...or as Dr. Fishman put it...a ROCKSTAR!!  First of all, she has gained 15 oz in the two weeks since her last clinic appointment!!  As of today, she weighs 10 lb 4 oz!!!


And now...to get to the lab results...


Let me preface this by saying that I have often been frustrated and upset by the length of time that it has taken to receive her outpatient lab results.  For this reason, I requested that her hepatologist (liver doctor) order the labs through the TCH "in-house' lab rather than sending it out. There is the possibility that this might result in a slightly larger out-of-pocket cost...but it's worth it to me for peace of mind. Well, I think I might do this more often, because the results were prompt and simply SPECTACULAR!!  


HER CONJUGATED BILIRUBIN LEVEL IS NOW 0.0 !!!!!!!  
That's  ZERO - POINT- ZERO!!!  
This is the best result possible, and the doctor said he was just "blown away" that her conjugated bilirubin level came down to 100% normal so quickly. 


We know that some BA patients' bilirubin level never does reach a normal level, so one can imagine how blessed and grateful we feel to receive this news today.


Here's her entire liver panel, for anyone interested in all the numbers:


AST- 131
ALT- 72
ALK PHOS - 293
GGT- 898
ALBUMIN- 4.4
CONJUGATED BILIRUBIN-  0.0  


Elise is scheduled for her next liver clinic appointment 3 weeks from now.  I am going to enjoy my little rockstar and assume that her liver is happy now, until proven otherwise!  


Thanks to all of our family and friends for the prayers and support...it means so much to us....and we know that prayers really do work!  True. Story.