I can't believe it's almost been a month since my last blog entry. The days go by SO fast. Anyway, Elise is now crawling, even if it is sort of "army crawl" style. She's definitely getting around....and fast! I hope she's not burning up too many calories because we've been working really hard at packing in the calories and fat!! (click "Read More")
Currently, Elise weighs 18 lb 6 oz. The transplant team goal is at least 20-22 lb at the time of transplant, so I feel fairly confident that she will get there....probably very soon!! She is now taking about 25 oz Pregestimil formula mixed with Polycose (30 cal/ oz), and NG tube feeds 8 hours/night (45 mL/hr). OH, and she's increased the amount of baby food she is eating each day now too!! She usually eats about 1-2 containers stage 1 or stage 2 food mixed with Polycose powder and MCT oil. I'm really looking forward to our next "weigh-in" with the dietician to see what she has to say!!
In other news, Elise is finally sleeping every night in her nursery!! For the longest time, I couldn't stand to leave her upstairs in her room because I was afraid that the NG tube would cause some sort of hazard, and I wouldn't be there to intervene. But, I'm pretty sure now that the worst "hazard" I will encounter is the occasional soaked bed due to Elise having pulled out the NG tube in her sleep. You would think those pumps would have some type of sensor which would enable them to stop pumping if the tube is pulled. But that makes too much sense.
So we are hoping to see everyone at "Transplant-BOO-looza"-- the fundraiser planned for October 20 benefiting COTA for Elise. Please check out the "Activities & Events" section of this website for more info on "Transplant- BOO-looza" as well as all the other great fundraisers currentl in the works!! And don't forget about our "PRAYERS for ELISE" silicone bracelets!! Please email me at ebabinlcsw@gmail.com or contact me through Facebook if you'd like bracelets.
Finally, I'd just like to say "thank you" to everyone who is following Elise's journey and sending prayers and positive thoughts our way! The support has been overwhelming, and we are most appreciative. Finding ourselves in this particular situation has been quite humbling, and we have really been touched by the care and concern of so many people, including family, friends, and even people we do not even know.
Currently, Elise weighs 18 lb 6 oz. The transplant team goal is at least 20-22 lb at the time of transplant, so I feel fairly confident that she will get there....probably very soon!! She is now taking about 25 oz Pregestimil formula mixed with Polycose (30 cal/ oz), and NG tube feeds 8 hours/night (45 mL/hr). OH, and she's increased the amount of baby food she is eating each day now too!! She usually eats about 1-2 containers stage 1 or stage 2 food mixed with Polycose powder and MCT oil. I'm really looking forward to our next "weigh-in" with the dietician to see what she has to say!!
In other news, Elise is finally sleeping every night in her nursery!! For the longest time, I couldn't stand to leave her upstairs in her room because I was afraid that the NG tube would cause some sort of hazard, and I wouldn't be there to intervene. But, I'm pretty sure now that the worst "hazard" I will encounter is the occasional soaked bed due to Elise having pulled out the NG tube in her sleep. You would think those pumps would have some type of sensor which would enable them to stop pumping if the tube is pulled. But that makes too much sense.
So we are hoping to see everyone at "Transplant-BOO-looza"-- the fundraiser planned for October 20 benefiting COTA for Elise. Please check out the "Activities & Events" section of this website for more info on "Transplant- BOO-looza" as well as all the other great fundraisers currentl in the works!! And don't forget about our "PRAYERS for ELISE" silicone bracelets!! Please email me at ebabinlcsw@gmail.com or contact me through Facebook if you'd like bracelets.
Finally, I'd just like to say "thank you" to everyone who is following Elise's journey and sending prayers and positive thoughts our way! The support has been overwhelming, and we are most appreciative. Finding ourselves in this particular situation has been quite humbling, and we have really been touched by the care and concern of so many people, including family, friends, and even people we do not even know.
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