Yesterday, we had Elise's "liver clinic" appt at Texas Children's Hospital. It went pretty well but was generally uneventful. She had an exam, doppler ultrasound, and labs. The doctors said that on exam Elise's liver felt enlarged, and it appears that there is some fluid in her abdomen. The ultrasound remains essentially unchanged from last month; there are cirrhotic nodules present and visible on Elise's liver, which does appear enlarged on ultrasound, as does her spleen. Her liver panel is slightly improved from last month, but still abnormal, as most of her liver enzymes are elevated. Her conjugated bilirubin is still at 0.0 though, and her INR and platelets are normal, so that's great news!
Here's her liver panel for those interested in the details.
Conjugaged Bilirubin: 0.0
(click 'Read More")
ALT 85; AST 77; GGT 598; ALK PHOS 346; Albumin 4.2
Platelets 200
GOOD NEWS that we received is that Elise weighs 18 lb 13.5 oz now and is 27 in long, which puts her over the 50th percentile!! The sort of bad news is that the doctors won't let her lose the NG tube yet. Their rationale makes a lot of sense though. They explained that the bigger she is at the time of transplant, the bigger her portal vein will be, which will reduce the risk of portal vein thrombosis (clots)--one of the most threatening complications immediately post transplant. So, I can't really argue with that.
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