So we had a wonderful visit from my parents a.k.a. Grammie & Paw this past weekend for Mother's Day, and it was just what the doctor ordered! We had the very best visit ever!! Seriously...I've been so nervous about Elise's upcoming transplant evaluation, that this visit with my mom and dad was just perfect--- a great distraction! Ethan and Elise were SO happy to see them and play with them! We all had a blast!
Here's some pictures from the weekend...
Here's some pictures from the weekend...
I don't think Grammie has ever had a bigger smile!! LOL!!
Grammie & Elise....you can really see in this pic that Elise has grown quite a bit!! :-)
Ethan & Elise... play time....I think they were both interested in Paw at this time...
And....she pulled the tube....PARTY TIME!!! I really believe she pulls it out on purpose....as evidenced by her expression in this pic. HA! Caught her in the act! LOL!!
Lunch at Landry's Seafood for Mother's Day. YES....that's a wine glass!!
Mommy getting some kisses!!!
Sleepy time... so glad she has no cares in the world. Mommy gets to do ALL the worrying. And that's the way it should be.
Ethan has started cutting the grass in an effort to earn money for new pants....LOL!!
Seriously....he doesn't usually wear pants w/ holes in them....but he was going to get them all dirty anyway, so fine!
Anyway, tomorrow begins Elise's transplant evaluation, and the last time I was this anxious was probably during the week leading up to her diagnosis of Biliary Atresia in December 2011. I just can't wait for this week to be over. Anyway, tomorrow--on Wednesday-- we meet with the dietician, child life specialist, social worker, infectious disease doctor, and her liver doctor followed by labs and a sedated echocardiogram and EKG. On Thursday, we have more lab work, a visit with the transplant coordinator, and then an abdominal ultrasound and chest x-ray.
Here's the link to the Texas Children's Hospital Liver Transplant Center.. just to provide some additional information on reason's for liver transplantation, types of liver transplantation, and the TCH liver transplant team.
Okay, well, please keep all the prayers and positive thoughts coming....we appreciate the support SO much! It is truly a blessing!
No comments:
Post a Comment