Happy Easter! Well haven't done a whole lot on this Easter weekend....but we spent the time well together...just us, as a family. We switched out some of Ethan's toys and watched him re-discover them., which is always entertaining. On Easter morning today, Ethan and Elise found their Easter baskets in the living room....and Ethan could hardly believe his sleepy eyes!! After Ethan emptied both his and Elise's baskets, Elise sat inside of her basket for a few minutes, just to show that she could...lol!
Although the kids' baskets did not contain any candy, the baskets that the Bunny brought for David and me did....and Ethan wasted no time in trying out some of the Peeps! I sure wish I could feed Elise some of that candy....she could use it. She is still losing weight due to her decreased appetite and vomiting related to her virus. This morning she was down to 11 lb 8 oz. I can't even begin to explain how this frustrates me...and scares me. I'm just praying so hard that things turn around soon so she can start gaining again. Anyway, I'm not looking forward to this week's liver clinic.
But, I'm trying not to dwell on the negatives when there are so many positives. We are so grateful to know that even if Elise's labs don't improve, and even if she doesn't manage to gain any weight, there IS something that can be done to help her....even if I don't really care to think about it right now. But you know...since the subject has presented itself...I was just talking to one of the doctors with whom I work, and he suggested that it might not be a bad idea to actually have a consultation with the transplant surgeon, if possible. I am constantly seeking out as much information as possible, so in keeping with this, maybe the transplant surgeon could give us a better idea of what exactly stands between Elise's position now, and the need for transplant. THAT would be something really great to know....I think.
Okay, well, on a happy note...here are a few Easter pictures! ENJOY!! :-)
Although the kids' baskets did not contain any candy, the baskets that the Bunny brought for David and me did....and Ethan wasted no time in trying out some of the Peeps! I sure wish I could feed Elise some of that candy....she could use it. She is still losing weight due to her decreased appetite and vomiting related to her virus. This morning she was down to 11 lb 8 oz. I can't even begin to explain how this frustrates me...and scares me. I'm just praying so hard that things turn around soon so she can start gaining again. Anyway, I'm not looking forward to this week's liver clinic.
But, I'm trying not to dwell on the negatives when there are so many positives. We are so grateful to know that even if Elise's labs don't improve, and even if she doesn't manage to gain any weight, there IS something that can be done to help her....even if I don't really care to think about it right now. But you know...since the subject has presented itself...I was just talking to one of the doctors with whom I work, and he suggested that it might not be a bad idea to actually have a consultation with the transplant surgeon, if possible. I am constantly seeking out as much information as possible, so in keeping with this, maybe the transplant surgeon could give us a better idea of what exactly stands between Elise's position now, and the need for transplant. THAT would be something really great to know....I think.
Okay, well, on a happy note...here are a few Easter pictures! ENJOY!! :-)
Elise, wearing her Easter dress from Nannie Rachel and enjoying her very first Easter basket!
Ethan can't believe his sleepy eyes....
My two little hatchlings, Ethan and Elise, on Easter morning.
Little Elise and her proud big brother Ethan!
Elise lounging around in her Easter basket after Ethan emptied it for her.
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