This past week was my first week back to work...and oh how I am enjoying my weekend at home with my family right now! I just can't get enough snuggles with my babies!! Unfortunately, the weekends go by too fast....and this one is just about over. When I finish this post, I need to go prepare Elise's bottles for daycare tomorrow and finish laundry for the week.
Yesterday, David and I brought Ethan and Elise to the mall to take a picture with the Easter Bunny! It was lots of fun, and it will of course be an annual tradition, along with Santa pictures at Christmas. Anyway, Ethan got a big kick out of the giant Easter Bunny this year....he was cracking up the whole time he was on the bunny's lap.
Anyway, Elise's first week at "school" went very well! She has continued to gain weight steadily though out the week, so I feel confident that feedings are going well, which is what they are telling me. As of this morning she weighs 11 lb 15 1/2 oz....so just about 12 lb now!! She is doing better and better every day with tolerating the MCT oil and Polycose Powder added to her formula for additional calories and fat. We will be seeing her dietician this week, on Wednesday, during her "liver clinic" appointment at TCH. I think her doctor and dietician will be very pleased with her weight gain. Of course, I'm still anxious about her labs though. I will feel so much better when her GGT level begin to come down.
OH, and Elise is 5 months old today!! WOW!! :-)
This blog is to document and share my experiences as a "Liver Mom," as I have affectionately begun calling myself. My daughter, Elise, was diagnosed with a rare pediatric liver disease "Biliary Atresia" (BA) shortly after birth and has now undergone a liver transplant. Although this has changed our life and daily routine, it is my mission to ensure that BA and transplant does not hold Elise back; I am devoted to creating as normal a life as possible for her.
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