I brewed my cup of coffee this morning, sat down at my laptop, and...what's this? OH, I found that I won a couple of bids on E-bay!! WOW! I got a bottle of the AquADEKs vitamin drops for the starting bid of $0.99!! And then...I also "won" two cases of Pregestimil formula for about $60 each, which comes out to $10 per can, which is about 1/3 of the retail price! Ahhhh....I LOVE E-bay....and Amazon....and.....oh never mind. Seriously though....saving some money here and there adds up to A LOT when you consider everything.
So, after I got over my E-bay wins, I weighed Elise on her new very own infant/ toddler scale. She weighs 11 lb 7 1/2 ounces. That means she has gained just about 8 oz in the past two weeks. It does make me happy that she is at least gaining weight...however slowly...but I'm just nervous that it's not enough. We have a liver clinic appointment tomorrow, so we'll see what the doctor and dietician have to say about it.
I was hoping to have a nap when David got home today, since he was home fairly early; however, that didn't quite happen. Around the time that David walked in the door, I was feeding Elise and noticed that she felt warm. I immediately checked her temperature....with three different thermometers...and concluded that she was running a fever of approximately 101. Because of her liver disease, we are not supposed to give her any medication without consulting the doctor....SO, I sat down to call the doctor. Which doctor? Well, I have our regular pediatrician's cell phone number on speed dial, so I called her first. She said to "just watch it" and call back if it continues to get higher. I initially thought this sounded like a good plan....until her temperature began to creep up. When it reached 101.8, I called the GI/ liver clinic. Elise's hepatologist advised us to bring her in to Texas Children's Hospital to run blood work and try to rule out Cholangitis. And that's what I did. I packed her up, brought her to TCH, and presented to the 24 hour outpatient lab to have this "stat" lab work drawn. After the specimens were collected, I sat waiting for the results. After about an hour, I asked the lab tech if the results were in. She informed me that the GI doctor on call tonight would receive the results when they were in, and I should follow up with him/her to get any information. Alrighty then. I promptly called and had the "on call" doc paged. Another 30 minutes passed, and no call back. That's the point at which I made the decision to go up to the GI floor of the hospital and try to find the GI doctor who was on call...whoever that might be. Well, thankfully, it took me only about 5 minutes to find the GI doc and "pin him down" for some answers. I then sat outside of his "call room" for the next hour waiting for him to review all of Elise's results.
THE RESULTS WERE GREAT!! Elise's liver panel, complete blood count (CBC with differential), and urinalysis were all normal!! The blood work showed no indication of any big infection brewing, so the doctor released us to return home. PRAISE GOD!!
So here we are, back home, and Elise is fast asleep.....hopefully for the night. I'm preparing to go to sleep myself, and I would love nothing more than to sleep straight through 'til morning. I have to bring Elise back to TCH for her "liver clinic" appointment in the morning....but that's okay; it's just another day in the life of a liver mom.
No comments:
Post a Comment